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Although most doctors, ophthalmologists and optometrists, are familiar with the protocols for treating mild forms of Dry Eye, it is an unfortunate fact that many doctors are not familiar with the protocols for diagnosing and treating more severe cases of the disease. If you have symptoms that aren’t being treated, it may be time to find a doctor who has experience treating more advanced forms of the disease.

If your doctor does not take you seriously, dismisses your symptoms, or doesn’t believe that you have them, or you feel you have not been diagnosed thoroughly, or prescribed effective treatments, you might try to educate your doctor. You might even share this website with your doctor. If your doctor continues to be dismissive, it might be time to find a new doctor.

Although not classified as a rare disease by the NIH, conjunctivochalasis is a frequent Dry Eye co-morbidity. It can be extremely debilitating if symptomatic, and can be missed or misdiagnosed as ocular neuropathy. If your symptoms are debilitating, and your doctors tell you there is nothing more that can be done, it might be time to find another doctor. You can ask about diagnosing and treating conjunctivochalasis or find an ophthalmologist who specializes in Cornea and External Disease.

You might seek help from any of these organizations when looking for a new doctor. Or check our list of doctors.

In Need of Diagnosis (INOD)

P.O .Box 536456
Orlando, FL 32853-6456
Toll-free: 888-894-9190
Telephone: 407-894-9190
Fax: 407-898-4234

Syndromes Without A Name (SWAN)

United States
Toll-free: 888-880-SWAN
Telephone: 269-692-2090
E-mail: swanusa@undiagnosed-usa.org
Web site: undiagnosed-usa.org

NORD (National Organization for Rare Disorders)

National Headquarters
1900 Crown Colony Drive, Suite 310
Quincy, MA 02169
Phone: 617-249-7300
Fax: 617-249-7301

Danbury, CT Office
55 Kenosia Avenue
Danbury, CT 06810
Phone: 203-744-0100
Fax: 203-263-9938

Washington, DC Office
1779 Massachusetts Avenue
Suite 500
Washington, DC 20036
Phone: 202-588-5700
Fax: 202-588-5701

Patients can contact NORD’s Patient Services Representatives at 1-800-999-6673 during the following hours:

Monday-Thursday 8:30 am – 7:00 pm EST
Friday 8:30 am – 6:00 pm EST
Si deseas hablar con alguien en espanol por favor llame al (844) 259-7178 para asistencia.
Web site: rarediseases.org