The Not A Dry Eye Foundation is proud to announce the launch of the Dry Eye Patient Council—the first of its kind. This groundbreaking initiative brings together patients and caregivers trained in Dry Eye disease and research methodology prepared to collaborate directly with investigators on study design, implementation, analysis, and reporting.
For years, those living with dry eye have felt unheard, while clinicians faced vague diagnostic criteria and limited treatment success. The Dry Eye Patient Council aims to close that gap by integrating the lived patient experience into scientific inquiry. These patient partners are not just passive subjects—they are co-creators, helping shape the studies that seek to improve patient care.
A New Era in Dry Eye Research
This shift marks a new era in research: one where empowered participation replaces token consultation. By embedding patient voices throughout the 
research process, the Council will strive to ensure that studies reflect real-world challenges and priorities—not just research endpoints.
The Council also embodies the Foundation’s original mission: to offer knowledge, support, and hope to those suffering from Dry Eye and related conditions. It’s a model for how collaboration between patients and researchers can lead to more meaningful, equitable, and effective outcomes.
As the initiative moves forward, the Council will continue to guide its direction, ensuring that findings are not only scientifically rigorous but also deeply relevant to those most affected.
Reshaping the Research Landscape
This is just the beginning. The Dry Eye Patient Council will share updates, reflections, and resources as the work unfolds—offering a window into what patient-led research truly looks like. By elevating the patient’s lived experience, we’re not only improving care—we’re reshaping the research landscape for dry eye and beyond.
Whether you are an investigator, a doctor, a patient, or a caregiver, if you would like to learn more about the Dry Eye Patient Council, write to us at contact@notadryeye.org